1,000+ people with MS help create new MS Society website

User input and feedback from MS community enhances digital engagement.

Chloe Green | 3rd May 18
Image of new MS Society website

More than 1,000 people living with MS (multiple sclerosis) have helped to develop the new MS Society website that launches today, 3rd May.

The MS Society recruited a panel of 150 people from the MS community to share views on the new site. The panel provided feedback on design and content, to ease-of-use, and many other features. An additional 1,000 people fed-back online, and over 800 on the beta homepage.

Particularly important support

“We’re committed to improving the lives of our community in every way possible, and hear more and more how valuable digital tools are,” said Michelle Mitchell, Chief Executive at the MS Society. “We know that our content on the website is a particularly important source of support. It is not just a way to get reliable information about an unpredictable condition; it is a way to bring people together and share experiences.”

Mitchell added: “There are 100,000 people in the UK with MS, and this website is our biggest and best way to reach them – particularly those individuals who are newly-diagnosed and learning to live with the condition. Our goal is to improve the online experience of everyone in our community, and we think we’re getting there. This is the first step in a long journey, but from the feedback we’ve already received from people living with MS, it’s absolutely worth it.”

Digital tech for MS

The new website marks the start of the MS Society’s digital transformation, which aims to use digital technologies to achieve a better impact for people living with and affected by MS.

Members of the MS community have been involved throughout the site’s development. This included an exclusive two-week testing period where they could review the site before anyone else saw it.

Eye-opener

Rebecca is a photographer who was diagnosed with MS in 2015. She was involved in developing the website right from the start: “It’s been a real privilege to be given this opportunity and a bit of an eye-opener. There’s so much to consider and it’s not just about how it looks – although that is still important. The most important thing for me is the personal element of the website – the forums and the stories.

Rebecca added: “If you’re living with a chronic condition like MS, especially as people don’t really understand it, there are times you can feel very isolated. Particularly if you’ve just been diagnosed or are experiencing a relapse. Knowing there are people out there who know some of what you’re going through is more valuable than you can imagine.”